Update

We are in Crumlin this week for Caolan’s reassesment.He has just went down for CT scan and MRI of his spine and brain.Tomorrow he goes to theatre to have his bone marrow checked and then MIBG scan that shows up any neuroblastoma.
One thing for sure holding him to get put to sleep does not get easier it is even harder now when he saying ‘no mammy no.’ But he is a strong wee man and no doubt he will be bouncing about later again.
Chemo is on hold to all scans results are back and in the mean time Caolan’s doctor in America is putting a plan together that she thinks will benefit Caolan.